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<article article-type="research-article" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="ru"><front><journal-meta><journal-id journal-id-type="publisher-id">rsp</journal-id><journal-title-group><journal-title xml:lang="ru">Научно-практическая ревматология</journal-title><trans-title-group xml:lang="en"><trans-title>Rheumatology Science and Practice</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">1995-4484</issn><issn pub-type="epub">1995-4492</issn><publisher><publisher-name>IMA-PRESS, LLC</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="doi">10.47360/1995-4484-2026-22-31</article-id><article-id custom-type="elpub" pub-id-type="custom">rsp-3870</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="ru"><subject>МЕЖДУНАРОДНЫЕ И РОССИЙСКИЕ РЕКОМЕНДАЦИИ ПО ЛЕЧЕНИЮ РЕВМАТИЧЕСКИХ ЗАБОЛЕВАНИЙ</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>INTERNATIONAL AND RUSSIAN GUIDELINES FOR THE TREATMENT OF RHEUMATIC DISEASES</subject></subj-group></article-categories><title-group><article-title>Лечение редких проявлений системной красной волчанки: рекомендации объединенной международной группы экспертов (ERN ReCONNET, SLICC, SLEuro)</article-title><trans-title-group xml:lang="en"><trans-title>Treatment of rare systemic lupus erythematosus manifestations: Recommendations of international expert group (ERN ReCONNET, SLICC, SLEuro)</trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0003-1053-6952</contrib-id><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Панафидина</surname><given-names>Т. А.</given-names></name><name name-style="western" xml:lang="en"><surname>Panafidina</surname><given-names>T. A.</given-names></name></name-alternatives><bio xml:lang="ru"><p>Панафидина Татьяна Александровна</p><p>115522, Москва, Каширское шоссе, 34а</p></bio><bio xml:lang="en"><p>Tatiana A. Panafidina </p><p>115522, Moscow, Kashirskoye Highway, 34A</p></bio><email xlink:type="simple">panafidina@inbox.ru</email><xref ref-type="aff" rid="aff-1"/></contrib><contrib contrib-type="author" corresp="yes"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0001-5793-4689</contrib-id><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Попкова</surname><given-names>Т. В.</given-names></name><name name-style="western" xml:lang="en"><surname>Popkova</surname><given-names>T. V.</given-names></name></name-alternatives><bio xml:lang="ru"><p>115522, Москва, Каширское шоссе, 34а</p></bio><bio xml:lang="en"><p>Tatiana V. Popkova </p><p>115522, Moscow, Kashirskoye Highway, 34A</p></bio><xref ref-type="aff" rid="aff-1"/></contrib></contrib-group><aff-alternatives id="aff-1"><aff xml:lang="ru"><institution>ФГБНУ «Научно-исследовательский институт ревматологии им. В.А. Насоновой»</institution><country>Россия</country></aff><aff xml:lang="en"><institution>V.A. Nasonova Research Institute of Rheumatology</institution><country>Russian Federation</country></aff></aff-alternatives><pub-date pub-type="collection"><year>2026</year></pub-date><pub-date pub-type="epub"><day>02</day><month>03</month><year>2026</year></pub-date><volume>64</volume><issue>1</issue><fpage>22</fpage><lpage>31</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Панафидина Т.А., Попкова Т.В., 2026</copyright-statement><copyright-year>2026</copyright-year><copyright-holder xml:lang="ru">Панафидина Т.А., Попкова Т.В.</copyright-holder><copyright-holder xml:lang="en">Panafidina T.A., Popkova T.V.</copyright-holder><license xml:lang="ru" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>Данная работа распространяется под лицензией Creative Commons Attribution 4.0.</license-p></license><license xml:lang="en" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://rsp.mediar-press.net/rsp/article/view/3870">https://rsp.mediar-press.net/rsp/article/view/3870</self-uri><abstract><p>Современные клинические рекомендации по лечению системной красной волчанки (СКВ) включают преимущественно вопросы, связанные с частыми клиническими проявлениями. В данном обзоре представлены некоторые редкие симптомы СКВ, обусловленные поражением нервной системы, желудочно-кишечного тракта, легких, сердца, кожи, некоторые варианты васкулита, гематологических нарушений, и разработанные международной группой экспертов клинические рекомендации по лечению 24 редких проявлений. В международную группу вошли 119 специалистов из трех экспертных групп по СКВ: Европейской референтной сети по редким и сложным заболеваниям соединительной ткани и опорно-двигательного аппарата (ERN ReCONNET, European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases), Международной ассоциации клиник по лечению СКВ (SLICC, Systemic Lupus International Collaborating Clinics) и Европейского общества по изучению СКВ (SLEuro, European Systemic Lupus Erythematosus Society). Эти согласованные экспертные рекомендации могут служить основой при выборе терапии в тех случаях, когда действующие рекомендации недостаточны или неприменимы.</p></abstract><trans-abstract xml:lang="en"><p>Existing guidelines for the treatment of systemic lupus erythematosus (SLE) mainly include issues related to common clinical manifestations. This review presents some rare manifestations of SLE caused by damage to the nervous system, gastrointestinal tract, lungs, heart, skin, some types of vasculitis, hematological disorders, and clinical guidelines for the treatment of 24 rare manifestations developed by an international group of experts. The international group included 119 specialists from three SLE expert groups: the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET), the Systemic Lupus Erythematosus International Collaborating Clinics group (SLICC), and the European Lupus Society (SLEuro). These consensus expert recommendations can serve as a basis for choosing a therapy in cases where current recommendations are insufficient or inapplicable.</p></trans-abstract><kwd-group xml:lang="ru"><kwd>системная красная волчанка</kwd><kwd>СКВ</kwd><kwd>редкие проявления СКВ</kwd><kwd>лечение</kwd></kwd-group><kwd-group xml:lang="en"><kwd>systemic lupus erythematosus</kwd><kwd>rare manifestations of SLE</kwd><kwd>treatment</kwd></kwd-group><funding-group><funding-statement xml:lang="ru">Настоящее исследование выполнено в рамках фундаментальной темы «Изучение иммунопатологии и подходы терапии при системных ревматических заболеваниях» (РК 125020501434-1).</funding-statement></funding-group></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Tsokos GC. Systemic lupus erythematosus. 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